Dear Family and Friends,
This time last year, as I was preparing to go to the Atlanta Sarcoma Walk, I was also preparing for my second major lung surgery only 10 days later. I am lucky this year that so far I am clean and healthy – and NED (no evidence of disease). Unfortunately, that is not the case for the two members of our little group in Atlanta we lost this year, nor at least two other friends of mine going through current treatment at Emory’s Winship Cancer Center.
The “good news” is that Sarcoma only affects 12,000 new patients in the US each year. But that is also the “bad news” too. It means most people are not aware of Sarcoma, so the disease awareness and funding for programs, research, and clinical trials doesn’t receive the attention of more “popular” widespread illnesses. I am so lucky that Atlanta does have a top notch Sarcoma center at Emory, and our patient support group is very active in helping each other and bringing awareness to our community. The contributions we’ve raised have gone directly to programs created for our members and future Sarcoma survivors. It is amazing to think that donations to the Southeastern Sarcoma Foundation are helping to fund our Peer Partner program (where Sarcoma survivors like me can work with new patients as they go through our pretty torturous treatment regimen), or it will help fund research right at Emory to create clinical trials that might actually save my life.
Bob and I are devastated that we are unable to attend the Atlanta Sarcoma Walk this Saturday at 10am Piedmont Park. So many of you were there with us to walk last year, or bought tee shirts or made donations, and we are so appreciative. We hope you will consider doing the same this time.
I am attaching some info and links that will either give you tee shirt ordering and/or Walk registration site or direct contribution information. I know they have a limited quantity of tee shirts, but the donation site should always be up and available, even after the Walk is complete.
Many thanks to all of you for your continued support – emotional and as well as financial. Please feel free to pass this email on to anyone you think would be interested in attending the Atlanta Sarcoma Walk, learning more about Sarcoma or making a donation to assist our program. If any of you have Facebook sites or other social networking locations you’d like to post this on, please feel free to do so. Thank you so much for helping us fight this awful disease!
Fondly,
Geri
Greetings Sarcoma Supporter!
We are one week away from the 3rd Walk for Sarcoma Awareness to be held at Piedmont Park Saturday morning July 24, 2010 at 10am. After some delays and many long hours we are excited to release the website www.sarcomaawareness.org which is run by the Southeastern Sarcoma Foundation. This site is still very much in its infancy but will guide you with the information regarding the walk. Please click on the link http://www.sarcomaawareness.org/Sarcoma_Walk_2010.html for all the details regarding the walk as well as if you would like to pre-order a t-shirt (limited quantities, see attached design) and we will ship the shirt to you in advance so that you can wear it at the walk.
We are excited to also announce that we will be celebrating the day at 12pm after the walk at the Park Tavern. This wonderful restaurant is located on the corner of 10th Street and Monroe Drive and its patio will be our staging area. They have generously (through Matt Spelich) provided a large area with tables for post walk dinging or hanging out. We will have a short program after the walk (15 mins) to celebrate the day. Please contact me with any questions prior to the walk. Free parking is available on 10th Street and there is a $5.00 fee for parking in the gravel lot next to Park Tavern located off Monroe Drive.
We are expecting over 200 people this year to make this the biggest and best Walk ever!
Sincerely,
Ned Crystal
678-779-8572 Mobile/Direct
678-233-3201 Fax
Southeastern Sarcoma Foundation – Founder & 2 Time Sarcoma Survivor
www.sarcomaawareness.org
Emory Winship Cancer Institute - Survivorship Steering Committee Member, Peer Partner Committee Member, Sarcoma Support Group Facilitator
YACS (Young Adult Cancer Survivors of Atlanta) - Board Member
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