Wednesday, November 28, 2007

Freedom till March

I was so happy to hear Dr. Saba say today"See you in March". That may not seem so far away to most people, but the idea that I am sort of "free from worry" till March is amazing to me. He was really pleased about the outcome of my surgery and that the chemo evidently worked. In March, I will have CT scans on my lungs again and sometime around then Doc O will order a scan on my leg. In the meantime, all I have to do is heal and have a normal life! He heard a little fluid around my lower right lung but since I have no fever he was not concerned. I think it does mean I need to be moving more, so I was up and moving around most of the day today. I am headed to Publix (by myself) tomorrow if I can, but can only buy really light things since I can't lift much. So I will do a little "light" shopping and go for short walks in the neighborhood. I may even get my nails done!

I am still hurting a good bit but got a new batch of pain meds today. Susan took me out running errands with her today for a while this afternoon and that was a good way to get me moving. By 5:30 this afternoon I was beat.

I am trying to do a little holiday shopping via the internet. We cannot take much over to England as we have a comuter flight with weight restrictions from London down to Cornwall where Bob's mother lives. That makes it really hard to bring gifts so we will shop once we get there. And that really is a shame since prices are much better here and the value of the dollar to the British pound is just awful.

Other than that I am just trying to heal and get better. Hopefully that will not take much longer, and I can get back to work soon. I have not had the ability to concentrate and read all this time, and I am really missing that. I have a long list of books so I am going to try to get started on that and see how I do. I have no other doctors appmts till Dec 19 so there should really be no news till then. I do promise to keep blogging every few days to keep you up to date my progress. I hope it does not get too boring for you to read -- actually, I hope it is the most boring thing you ever read. Boring is good!

Tuesday, November 27, 2007

Hanging in there

Each day seems to get a little better but I am still pretty uncomfortable. I've worked my way through the real heavy duty pain medication. They only gave me about 5 days of that along with what they call "break through" pain medicine. You take that along with the heavy duty stuff for when that is not enough and for after heavy duty stuff is gone the "break through" is what you take for regular pain meds. I am not sure what I was thinking, but I hoped I would only need one prescription of that. Boy was I wrong! I am going to see my chemo onocologist Dr. Saba tomorrow, so I am hoping he will just refill it. If not we will have to go over to Dr. Miller's office and pick up a prescription.

As you may remember, I saw Dr. Saba after I got the PET scan results. He told me I could wait a couple of months to have the lung surgery if I wanted, but that we would not know what the lesions were till they were surgically removed and biopsied. When he knew I was having the surgery, he told me to set up an appointment with him for a week after surgery. I suppose this was to set up post surgical treatment, if necessary. At that point we would be discussing if I would need more chemo, radiation etc. While I was in the hospital, one of the nurses, Marva, from the chemo center came to visit. She brought Dr. Saba's new Nurse Practioner, Felicia with her. It was so nice of them to come and see me. I asked Felicia if it was still necessary for me to see Dr. Saba after surgery since the lesions were not malignant, and she felt it was still a good idea. I am assuming the only "treatment" is going to be repeated CT scans every three months to make sure the lesions, malignant or not, stay away. Dr. Saba had already set up CT scans for January anyway. It will be nice to see him and be able to celebrate the fact there was not cancer in my lungs. He gets a lot of credit for that since he prescribed the chemotherapy treatments before and after my lung surgery.

I am not sure who is "in charge" of me now. After my leg surgery, Doc O (leg surgeon) said he was my gatekeeper from then on, and he would be ordering all scans. When the Oct scans showed the lung problem he sort of turned me over to Dr. Miller (the lung surgeon) and I set up no further appmts with Doc O. Now Dr. Saba has ordered the lung scans, but I know in Jan I should be having a scan on my leg too. Who orders that? Hopefully tomorrow I will learn "Who's on first?"

However, I do know my real "first"is Bob. He came through for me once again-- as always! When I left the hospital they asked if I had someone who could take out the staples from my chest/side area so I would not have to come back to the doctor until a month after surgery. I am pretty sure they thought I knew a nurse, doctor friend, who could take the staples out. When I told them my husband could do it they asked me his background. When I told them he was an engineer they looked at me like I had 2 heads. I explained all the stuff Bob had had to do for me the last 10 months and that we had a lot of nurse and doctor neighbors if we had a problem. I am not sure they had the same level of confidence in Bob that I did but they gave me the staple removal kit none-the -less. Bob took them out last night with no problems. He is ready to perform heart surgery now.

And finally, we were able to set up a time to go to England to see Bob's family! We have not been in year since we missed our regular summer trip there. We are going at the end of December. I will only be gone about 10 days(I've got to get back to a normal working life!) and Bob is going to stay on a couple of weeks more so he can spend more time with his Mother and kids. We have both been looking forward to going for so long. I had hoped Bob could have gone late this summer, but we had to put that off when my leg wound was not healing as quickly as we'd hoped and I got the wound vac etc. He is still having to pack my leg wound each day but it should be closed up in the next week or so. Anyway we are excited about the trip. We could not get it scheduled to be there for Christmas, but we won't miss it by much. We've been spending the last few New Year's Eve in Sarasota, and we will miss that, but we are delighted to be able to ring in the new year in the UK. Actually, I am delighted to be able to ring in the new year anywhere --and especially to not be in the middle of chemo treatments while doing it!

I am now ready to get into the Hanukah/Christmas spirit! I have a lot to celebrate.

PS Just a reminder -- if you sent a comment to the blog I have no way of responding to it personally to you as they do not give me your email address. So if you've commented and not heard from me personally that is why. I have heard from so many folks-- and many I have not seen in years -- and I am so appreciative.

Friday, November 23, 2007

Just amazing

I don't think I even yet recognized the magnitude of what happened this week and how lucky I am. That this "lung thing" (I do not know what else to call it) was not cancer is something short of a miracle. Bob probably told you that Dr. Miller said only one other time in 20 years had he seen my same situation turn out as lucky as I was. All others (and this is basically what he does a for a living) had been malignant. Thanksgiving certainly takes on a whole new meaning for me this year.

I still feel pretty uncomfortable. I am sitting up better, but am living for my pain medication. I have about a 6 or 7 inch incision. I feel like someone kicked my in the side of my rib cage and slit me open with a knife. That is pretty much what happened. I can't really lift anything, and it is hard to reach for anything more than about 6 inches away(expecially dishes, laundry, etc). I do feel a little better each day but sometimes the slightest movement the wrong way really does hurt. This is my first time to even type, but Bob promised I would blog today and so I am!

And although I hurt like crazy, I could not be happier! I am so thankful and happy that I really do not care about about the pain. It will go away!

We cannot thank you all enough for everything you all have done for us the last several months and especially for your prayers in recent weeks! They worked, and we are so grateful.

I am about out of gas today so I am going to sign off until next week. I hope you all had a great Thanksgiving. Ours was just amazing!

Thursday, November 22, 2007

Thanksgiving Day

Geri came home yesterday afternoon. She is spending today resting uncomfortably. She says it only hurts when she laughs, coughs or breaths. Also, she has laryngitus which means I can''t hear here her when she shouts at me.

We wish you all a very happy thanksgiving. We are truly thankful for all the kindness of friends, family and neighbors who have supported and helped us through this year, and for the the medical professionals who have provided the care and expertise to get Geri to this happy point.

Geri promises she will do the blog tomorrow.

Tuesday, November 20, 2007

Tuesday evening

The second chest tube was removed today and the epidural. Now I only have the two central IV lines in my neck. I don't have the sharp pains in my chest now just a level-6 dull ache and I still have the jitters. As the epidural drugs wear off the pain could increase and the team may address that with some IV pain killers. Dr. Miller has just been in and said I may go home tomorrow if the pain is manageable and I'm comfortable. Yipee!

Monday, November 19, 2007

Making progress

I got one of the chest tubes out today and the catheter. I had hoped that removing a tube would help the back pain but it has not. The pain management team went back & forth as to whether they should change my drugs but in the end left things as they are. Should get the the other tube out tomorrow and the epidural. I'll be surprised if I get home before Thursday. I'll keep you posted.

Sunday, November 18, 2007

Sunday Evening

I am feeling better today, although I still have shoulder pain and the jitters from the pain medication. I walked to the nurses station twice today, although I had to use a walker for support. It looks like at least one tube will come out tomorrow, maybe both if the Dr. is happy. If both, they will also remove the epidural line. I need to be here for at least 24 hours after the epidural is removed to see if I can handle the pain without it. Dr. Miller says I'll be here till Wednesday or maybe Thursday morning so the trip to the beach for Thanksgiving is off. We will do it another time.

I have slept better the last two nights with benedryl, although they wake me up to take vital signs, draw blood and do breathing exercises every 4 hours. Of course, they all come at different times so I'm lucky if I get two hours straight. Looking forward to anothers good nights sleep tonight, and I'll see y'all tomorrow.

Saturday, November 17, 2007

The day after the day after

Saturday night in the big city. Geri is not feeling so well today but still excited about the overall situation, except for the fact that Alabama lost. Her shoulder still hurts and she is feeling jittery, which is probably caused by the epidural drug. Her hematocrit level is low and the Dr. said they may give her some blood tomorrow if it is still low. Syd was here during the day today and Cindy is here now and will stay the night with Geri.


Th.. th.. th.. thats all folks.

Friday, November 16, 2007

The Day After

By now you know about my good news. I'll will be so glad to heal from this surgery and get back to a normal life. I had pain in my shoulder last night and didn't sleep much; I don't know if it was the pain or the excitement. The pain is still there today but the "pain management team" have been working on it. I still have a IV in one arm, two central IV lines in my neck, the epidural in my back (with an "on-demand" button), two chest drain lines and a catheter, and oxygen tubes up my nose. With all these tubes I look like a plumbers nightmare. They won't let me have sleeping pills but I can have Benedryl which will help me sleep tonight, I hope.

Cindy has been here with me today and Bob joined us his evening. Syd is coming during the day tomorrow to play backgammon and I will watch some football (maybe). I will be here until at least Tuesday. The chest tubes will be coming out on the fourth day and the epidural, so I expect I will feel more pain then.

Many thanks to all of you for your prayers, best wishes, love and support. That is what has got me through all this. Wherever we spend Thanksgiving this year I know we have a lot for which to be thankful.

(Back to Bob) Yesterday, when Dr. O. told the entourage the good news the distaff side of the group let out such squeals of delight and whoops of joy that the policeman stationed in the lobby came rushing up the escalator to the mezzanine level where we were to quell the riot. Forty five minutes later Dr. Miller spoke with us to confirm that all went well and said that in 20 year of lung surgery on sarcoma patients this was probably only the second time the lesions had not been cancerous. He was surprised, but delighted, with the outcome. He also was concerned about flying in an unpressurized airplane so soon after lung surgery so, if we go, we will drive to the beach on Wednesday. It all depends on how Geri feels next week. Have a great weekend.

Thursday, November 15, 2007

Operation Day

Its 11:40am. Geri is still in pre-op waiting her turn. She is number 3 for the day and they have just taken No. 2 from pre-op so it will be 1:00pm before she goes to surgery. They have installed IV lines and an epidural line, the latter will remain in for a couple of days as long as she has the chest tubes. More later.

3:15pm Geri went to the operating theater at 2:40pm and will be there for about 2 hours. Will update after the surgery. The entourage is hanging out at the hospital after lunching in style on hot dogs from "The Varsity" (the infamous fast food joint near the hospital).

3.48pm Geri is still in surgery but the news is very good. Dr.O. (the leg surgeon) has just told us he had just looked at the sections from the lung and both areas are clear of cancer. The thoracic surgeon is still closing Geri up and will be out to tell us officially the results but Dr. O. knew we would be anxious. More later

Tuesday, November 13, 2007

Thursday's the day

I went for my pre-op testing today, and it was an all day affair. I got there at 10:30am and did not leave until 3:45pm -- and no time for lunch. As I learned when I had my leg surgery, there is a lot of sitting around and waiting with all this pre-admissions stuff. I was smarter this time and brought my laptop and got a lot of work done while I was just sitting around. Once I got to see a nurse all they did was ask a lot of questions, take a little blood and a chest x-ray. I got to forgo the EKG (after a lot of phone calls) because of one of the heart test I had a couple of weeks ago that included an EKG.

After that, I had to go to Dr. Miller's office (in the same building) and meet with Jim his Physician's Assistant, sign a lot of papers and go over the surgical procedure. While Jim acted as if the procedure was "run of the mill", I have to admit it is has me pretty scared. There is always one thing that throws me it seems, and this time it was the fact that I have to be in ICU at least the first night. I know it is good to know those folks will be watching me, but the seriousness of that kind of shook me up a little. They keep telling me it is "easier" than my leg surgery -- but I don't know if it is "easier" for the doctor to do, "easier" from a pain standpoint, or "easier" from an overall recovery standpoint (since I am still recovering from the leg surgery so I hope this one is better!). I think anything is "easier" as long as it is not happening to you!

Dr. Miller does not assign a surgical time till the day before surgery as things seem to change a lot. I am to call around 4pm tomorrow to find out when I need to be there. They told me if we did not connect to just be at the hospital at 5:45am. Of course I have an entourage coming for surgery -Bob, Cindy, Michael, Syd, Aunt Rhoda, Uncle Marvin and Cousin Gladys, but still I do not have a time to tell them to come. The procedure, a Thorocotomy, should take a couple of hours. I should be in a regular room on Friday. I don't know what the rules are about guests in ICU. I know last time after surgery they did let everyone come up for a little while once I had gotten into my room. Cindy was planning on staying all night with me, but I am not sure they will let her stay in ICU.

I have a few last minute work things I need to take care of tomorrow, as well as some personal stuff --including getting my nails done late in the day. No self-respecting princess checks into a hospital without first having a manicure and pedicure. Since I still have no hair (a little 5 o'clock shadow) I do not need to have that done now. Eyebrows and eyelashes are coming back like crazy -- and in the most inappropriate places!

I should be in the hospital till Tuesday or Wednesday. If I am out by Tues we have a flight on a private plane to take us to Destin on Tuesday night. If it is Wednesday, we either drive or stay home. We'll just have to take that one day at a time. I can't worry about that yet -- but I will go ahead and pack for the beach in case we need to make a quick get-away. I figure I am mostly just going to be lounging around so I will not need much in the way of fancy clothes -- gym shorts, sweats, and pjs.

Bob will blog with all the news as soon as he can on Thursday after surgery. We should know right away if any of the lesions are malignant or not, but will not know course of treatment till I meet with the oncologist (if they are malignant) in a couple of weeks. I am going with the plan that they are not right now. Then I will deal with whatever I have to in a couple of weeks.

Well it has been a long day --really a long week with everything I am trying to cram in. Maybe I will get some rest after surgery! Just as long as they keep the pain meds coming ahead of the pain.

Thanks again for all your prayers and good wishes! Have a great Thanksgiving!

Tuesday, November 6, 2007

Finally heard from the surgeon

Of course, just as I walked into an agent's office today, my phone rang and it was Dr. Miller (Doc M -the lung surgeon) who I have been waiting for a week to call me. He pretty much said the same thing that Dr. Saba said-- I could wait 3 months and do another scan, but the smart thing was to go ahead and take the lesions out and not take any chances. He did say he would be able to make a smaller incision than planned, but I am not sure why. He said he would take the lower one (easier to reach) out first biopsy it first, and if it was malignant he would make the incision bigger to get the upper one out -- which is more difficult. Regardless, he will take them both out, but I am not sure why the incision size changes.

He said the risk factor for the surgery itself was about 1%. Before he had told me he felt there was about a 95% chance that the lesions were cancer. When I repeated that today and asked if he felt the same, he indicated we still needed to be concerned, but since I had beem immuno-supressed from chemo, that it could be an infection or inflamation. So, I am a lot more hopeful that this is not cancer. At any rate, if it is, then the chemo has been effective since the lesions are smaller.

So we are going ahead with surgery on the 15th. He said I would be in the hospital 4 or 5 days. Again he said it would not be a problem for me to travel by car or plane (not me driving) to a nearby state even the day I left the hospital, but full recovery will not be for about 3 weeks. That gets me out of a lot of things --carrying suitcases, groceries, vaccuuming (not that I do a lot that mind you), maybe even laundry. That may be pushing it a bit!

Today was a good day. I left the house at 7am for work and did not get home till about 6:30. I am tired, but it was so good to be out visiting my agents. I have full days the rest of the week with local travel and am just waiting to see when I have a pre-op appointment next week to book those days. I have a whole lot of work that needs to be done by the 15th so I am a little panicked, but I think it will take my mind off things.

I don't expect much will change between now and surgery date so if I don't blog for a couple of days, don't worry. I expect between now and then my life will be pretty boring -- mostly work (but not boring to me), trying to get household things taken care of, and having a little fun. My friend Jill from Tn as well as sister-in-law Michelle and niece Elise may all be here Sunday night. I have my tennis team's "end of season" dinner tomorrow night and that is about it. I will surely blog before surgery, and I know Bob will take over and update you all after surgery for a couple of days till I am able!

It has been a long but fun day. I am going to check a few work emails and then just watch TV and crash early. I have a conference call at 7:30 am and then Nurse Kathy comes just after that is over. Have a good evening!

Monday, November 5, 2007

My choice

We met with Dr. Saba, my chemo doctor today. We still have not talked to the surgeon, Doc M. Dr. Saba said we could wait 3 months, have CT scans and see what the lesions do or go ahead and et them taken out. The only way we are going to know what is in my lungs is to have surgery and remove them. Whatever is there could be smaller because it is nothing, or it is the cancer that shrunk because of the chemo I just had. Bob and I discussed it and decided to go with the surgery. The tumor in my leg grew so fast, it scares me to let the unknown linger in my lungs. Also, I think I would just be a basket case for 3 months waiting to see the next scan. So unless Dr. Miller weighs in with something totally different, we will proceed with surgery Nov 15. It gives me time to heal during Thanksgiving, and I am anxious to get this overwith. Not sure about treatment after surgery. Dr. Saba said for me to come see him a week after surgery, and if it is cancer, we will discuss treatment then. I still feel really good about this. I either have nothing, or I have another cancer that responds to the chemo. It could be a whole lot worse.

Except for the outcome of the AL vs LSU game we had a good trip to Birmingham. I got to see some cousins, aunt and uncle in the afternoon, and all of Michael's family the rest of the time. It was a quick trip, but it was nice to see everyone and get out of town for a day. When Bob and I got back we went for a walk -- a little over 2 miles -- down by the river close to our house.

And now it is time to get some work done!

Friday, November 2, 2007

No news

I called Doc M's (lung surgeon) office this morning to find out when I might hear from him regarding the PET scan. His secretary told me she had printed it off and put it on his desk and she "hoped" he'd have time to come up (from surgery, I suppose) sometime today to review and call me. But it is 5:30 and I have not heard from him. I know he has surgery 4 days a week (all but Tues I think), and he did not get my report till late Wednesday. Hopefully I will get his interpretation early next week.

For this first time this year we are actually going out of town for a night. Tomorrow Bob and I are going to go to Birmingham to see Michael, Michelle and the kids just to get away for a night. It is an easy drive, and we will get their in time to watch the Alabama vs LSU game. No bit plans -- just a quick getaway before surgery.

So everything is pretty much status quo. I am working and getting out as much as I can, and that is about it. Have a good weekend. I will probably not blog this weekend unless I hear from Doc M --which I doubt at this point.