I am so sorry I worried some of you by not blogging after my scans yesterday. It was all good news but everything ran late, and I rushed home just in time to head back to Emory for my sarcoma suport group last night. It was an exhausting day with full CT scans (chest, abdomin and pelvic area) and MRI on my leg. Then we had a long wait to see DocO. Often, when he sees me the full radiology written report is not in, but he has reviewed the scans and can generally tell what they are revealing. He always emphasizes there is a lot of scar tissue so there could be something he is not seeing, that the radiologist will pick up, but he has not been wrong yet. While our long wait to see him yesterday produced a lot of panic on my part, it was enough time to get the full written radiology report which was great news that showed nothing new and all clear!
DocO was a little concerned that I looked a little tired. I told him that since there was NED (no evidence of diease) meaning no cancer, that my being tired was not his problem but one I would take up with my family practice doc. I have been pretty stressed about these scans for the last couple of months so I think that is probably why I am tired all the time. Funny - I feel alot better today! But I will go get some blood run and see if there is more to it. But one thing for sure-- it is not sarcoma! The do a CT on my chest every 3 months but only look at pelvic, abdomin and leg every 6 months. That makes me more nervous about these scans as it seems like some bad stuff could grow in that time frame. I keep forgetting that if the docs thought that was an issue they would run the tests more frequently, but logic really does not come into play for me around scan time. I just get in panic mode and can't focus on much else!
I went to my Sarcoma support group and we talked alot about scan anxiety, and we all felt the same way. It is a great "rush" when the doc tells you all "looks good" and then about 20 minutes later you start sinking because you know that good report is only "good" for the next 90 days till the next time. You don't have a lot of time to celebrate the good news. Fortunately, the sinking feeling only last a few days and then you get on with life. Sharing all that at support group last night really helped me get past that alot quicker so I am already on the upside now!
We have been taking a lot of long weekend vacations the last couple of months so that and work has kept me occupied and not thinking so much lately. We have been visiting friends in Navarre Beach, Sarasota, Denver and Steamboat Springs, CO and it has been great. They have been good relazing vacations and gotten to spend wonderful time with good friends. This weekend we have a friend Debbie visiting us from St. Louis that we have not see in about 10 years. We go to Birmingham for Thanksgiving next Thursday, and then Bob is off to England on Dec 7 for Christmas. I will join him on the 21st, and we are both really looking forward to that.
Next scans are Feb 16 and I don't even see the DocO till 3:30 which really means about 5pm. So I will promise to blog that night but know it will be later since we will be coming back in Atlanta rush hour so who knows how long that will take.
We wish you all a wonderful holiday season. Again, we have an awful lot to be thankful for. All of you and your support are a major part of that!
Thursday, November 18, 2010
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1 comment:
Glad things are continuing to go well. I haven't seen Cindy in a while, so tell her next Thursday that I said "Hello" ;-)
Hope you have a wonderful visit with your family next Thursday and you have a really great Friday....RTR!
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